Frequently Asked Questions
Q: Why is brain donation important?
A: Many neurological disorders are unique to humans. Therefore, human tissue is vital in order for scientists to conduct effective research. A lack of tissue for study is one of the major barriers to advancing our knowledge of these terrible diseases. Q: Why are brains from people without neurodenerative diseases needed?
A: Scientists need normal brain tissue for research. They must compare changes occurring normally in the brain with age to the changes occurring in diseased brains. Q: How is the tissue used? A: The tissue will undergo a complete neuropathological analysis to establish an accurate diagnosis. Once the report is completed, the results will be sent to the family. The tissue is then stored and distributed to qualified researchers conducting studies in the field of neurological disorders. Q: Will it delay funeral plans? A: No. Removal of the brain is completed shortly after death. Therefore, it should not delay funeral plans. Q: Can the family still have an open casket? A: Yes. Removal of the brain does not leave any visible marks. Funeral homes routinely deal with these situations.
Q: What is done to ensure my privacy? A: The Carroll A. Campbell Jr. Neuropathology Laboratory strives to protect the confidentiality of donors and their families. Every donor is given a unique identifier number to protect identity. All patient information is stored in a secure database with restricted access. No personal information will be linked to the tissue samples when future research studies are conducted.
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