Longevity After Injury Project
SCI Research Reaches New Milstone!
Investigators from the University of South Carolina meet with investigators from the SCI team at MUSC as they kick off the funded project entitled "Number, Primary and Secondary Diagnoses, and Costs of Inpatient Hospitalizations in a Population-based Cohort of People with Spinal Cord Injury".
This grant awarded by the Administration for Community Living (ACL) represents a collaborative effort with the University of South Carolina and will identify diagnoses and costs of rehospitalizations among individuals with SCI in South Carolina.
Five New Grants Awarded to the SCI Research Team!
We are very excited to share a couple of milestones with you from our research on spinal cord injury (SCI).
It was a banner two months for the University in terms of new federal funding for research and dissemination in spinal cord injury (SCI). The Administration for Community Living (ACL) awarded the HELP team three new grants and one subcontract, and the Department of Defense also awarded another grant, during August and September 2016. Click each of the links below to see the lay abstract.
The first ACL grant is to extend the SCI Longitudinal Aging Study which is a 45 year study of life outcomes after SCI. It is the most long-standing study of outcomes after disability anywhere in the world. Many research participants have lived 50 or more years with SCI, even though it was widely believed that life expectancy was very short at the time the participants were enrolled in the early 1970s.
A second ACL grant represents a collaborative effort with the University of South Carolina and will identify diagnoses and costs of rehospitalizations among individuals with SCI in South Carolina.
The third grant will utilize technology to develop individualized calculators for the risk of secondary health conditions, such as pressure ulcers and unintentional injuries. This information will allow providers to quickly assess risk of secondary health conditions, with the goal of eliminating high risk behaviors and improving overall health.
The DOD has funded a qualitative study to help us better understand negative health spirals among individuals who are aging with SCI, including both civilians and military veterans. It has been observed that health may change dramatically with aging, even among those who have had years or decades of excellent health. The study will identify the patterns and trigger points that may be used to promote prevention so individuals may live healthier lives with greater longevity.
"SCI Model Systems: Emergency department visits, related hospitalizations, and reasons for utilization of the emergency department after SCI"
The subcontract is with the prestigious model SCI Systems, funded to the Shepherd Center in Atlanta Georgia, and will focus on emergency department visits after SCI.
Congratulations to our very own principal investigator Dr. Krause PhD,who was selected as the keynote speaker for MUSC's 2016 Faculty Convocation. Dr Krause gave an inspiring keynote address about the importance of diversity and inclusion at the university and beyond for persons with disabilities. Dr Krause is an expert in the SCI research field, and also lives with the disability. Read the entire MUSC Catalyst cover feature here: http://academicdepartments.musc.edu/newscenter/2016/convocation/index.html#
As you know, we held a very special event in Minneapolis on June 7 for long-term SCI survivors who are part of our ongoing research study that was initiated by Nancy Crewe back in 1973. Please visit the links below to view the event pictures along with an article that appears in New Mobility Magazine summarizing the event.
You now can find the photos from our wonderful celebration of 40 years of SCI research at the following website:
New Mobility Magazine published our story in this month’s edition. You can view the article at the following website:
Historic Gathering of 40 and 50 year SCI Survivors
On June 7, 2015, the spinal cord injury (SCI) research team from the Medical University of South Carolina, under the leadership of Dr. James Krause, held a historic celebration in Nicollet Island Pavilion in downtown Minneapolis. The event brought together study participants and guests, including 10 SCI survivors who are more than 50 years post-injury. The event commemorated 40 years of research, initiated by Dr. Nancy Crewe, at the University of Minnesota in 1973.
Former President of the National SCI Association, John Schatzlein, received the Career Contributions Award. Barbara Armour was presented with the Longevity after Injury Award, having reached 58 years since the onset of her SCI. The collective accomplishments of the participants are amazing. There have been 2200+ participants since the study’s inception in 1973 and they have collectively worked for over 12,500 years, logging more than 22,000,000 hours of gainful employment.
The event was a reminder of the magnitude of accomplishments by so many people with SCI. Larry Kegan was a boyhood friend of Bob Dylan and played on stage with him. Other individuals have written books, including Robert Peters (A Dive Too Deep), Dr. James Boen (The World’s Oldest Living Quadriplegic), and Mike Patrick (I Still Believe in Tomorrow). Darcy Pohland was a television reporter for a local news station.
When the study was initiated in 1973, living 40 years with SCI was viewed as unattainable, yet there were 26 people at the event to have lived more than 40 years with SCI. Those attending were proud of their involvement with research since knowledge gained from their participation has helped us to better understand SCI and the changes that occur as people age with SCI.
If someone wonders what they can do after SCI, they need only to look to what this group of people has done. They have lived and participated in their communities, been in long-term relationships, and worked to better their lives and the lives of others. All has been accomplished despite the harsh health consequences of SCI and aging, and the barriers to marriage and employment that often come with needing financial assistance for the high cost of SCI.
Together, we have worked to facilitate accessible environments, promote employment, and advocate for policies that create opportunities. We look forward to the next generation of people with SCI building upon these accomplishments and with hope for anyone with SCI that they have the opportunity to live long, healthy, and fulfilling lives.