Longevity After Injury Project
SCI Research Reaches New Milestone!
We would like to share a couple of milestones with you from our research on spinal cord injury (SCI). The first milestone is from our work on the Longevity after Injury Project, which focuses on health, function, and quality of life, and the second is from our beyond Beyond 90 Days program of research focused on employment.
Prospective cohort study from the Rehabilitation Research and Training Center on Secondary Health Conditions after Spinal Cord injury reaches 5000 participants!
We are very excited to share that our study of health outcomes and longevity after SCI now exceeds 5000 participants. This study includes people who were enrolled in Georgia, South Carolina, and Minnesota. On January 15, 2016, we received two responses to our prospective cohort study of health and mortality after SCI, raising the total number of participants since its inception to 5001! This study was started in 1997 at the Shepherd Center in Atlanta Georgia, when 1386 people with SCI completed self-report assessments that were designed to measure variables and outcomes related to health and secondary health conditions. The study was initiated as part of the Georgia SCI Model System, funded by the National Institute for Disability and Rehabilitation Research (NIDRR) (now known as the National Institute for Disability Independent Living and Rehabilitation Research, NIDILRR). This is a tribute to the partnership between our funding agents, staff, and our research participants, all of whom are working together to help us better understand and promote the best possible health among people with SCI.
New study has begun on quality employment throughout the lifecycle after spinal cord injury.!
This month we began collecting data for a new study on quality employment outcomes throughout the lifecycle after SCI. The unique aspect of this study is the focus on the quality of employment, rather than simply whether someone is employed. We hope to identify the role of facilitators and barriers to employment, including disincentives, as well as learn from those who have had great success vocationally throughout their lifetime. The information will be used to help policymakers allocate resources to help people with SCI and other disabilities to achieve the best possible outcomes.
Thank you for your continued interest in our program of SCI research.
On Tuesday, January 19th, Dr. David Powell, Director of the Spinal Cord Injury Clinic at Roper St. Francis, presented on Nontraumatic Spinal Cord Injury: Etiologies and Outcomes. Click here to view his presentation.
As we conclude 2015, we want to thank our research participants, consultants, and all of those who continue to support our research. Our goal is to help improve the health, function, quality of life, employment, and longevity of people with SCI, MS, and other disabling conditions through research and education. We have made great progress together this year.
We wish you all the best this holiday season and a prosperous new year.
Friday, November 13, 2015 our Health & Rehabilitation Science PhD student researcher, Catherine VanDerwerker, presented at MUSC's 2015 Student Researcher Day among her student peers. Catherine's poster was entitled: "Association Between Major Depressive Disorder and Self-Reported Exercise Activity in Chronic Spinal Cord Injury". Congratulations to Catherine and her co-authors Drs. Yue Cao, Christopher Gregory, and James Krause!
On September 7, 2015, Dr. Krause presented on 40 years of SCI research at the annual conference of the Academy of Spinal Cord Injury Professionals (ASCIP) in New Orleans, LA. Dr. Krause is the 19th recipient of the Essie Morgan Lecture (formerly known as the Essie Morgan Excellence Award). This is a great honor, as the Essie Morgan Lecture is an invited lectureship awarded to persons who have made significant contributions to the advancement of social services for persons with spinal cord injury. Essie Morgan was the first African-American woman to become the first Chief of the newly created program: Rehabilitation and Staff Development, for the Spinal Cord Injury Service. This program grew out of her work as a liaison social worker for the Spinal Cord Injury Service with the VA's Washington Central Office. Click here to learn more about Essie Morgan.
Click here to view slides from the presentation.
Congratulations to 4 of our participants from South Carolina, Georgia, Maine, and Minnesota. These participants completed our updated contact card information questionnaire, and based upon a random selection, they each received a $50 visa card. One lucky participant from South Carolina won our $250 giveaway! Congratulations to everyone. Look for more opportunities to win in the future.
Dr. Krause presented on 40 years of SCI research at our quarterly SCI Grand Rounds on Tuesday, October 13th. To view past Grand Rounds presentations, click here.
September is spinal cord injury awareness month. To gain insight on living with SCI, please click here to watch our mini documentary featuring Alex Jackson.
On Thursday, August 27th , Dr. Yue Cao, Assistant Professor of the Center for Rehabilitation Research in Neurological Conditions, Medical University of South Carolina, presented on “Unmet Expectation of Adjustment: Impact on Depression and Life Satisfaction Among People with Chronic SCI."
As you know, we held a very special event in Minneapolis on June 7 for long-term SCI survivors who are part of our ongoing research study that was initiated by Nancy Crewe back in 1973. Please visit the links below to view the event pictures along with an article that appears in New Mobility Magazine summarizing the event.
You now can find the photos from our wonderful celebration of 40 years of SCI research at the following website:
New Mobility Magazine published our story in this month’s edition. You can view the article at the following website:
Historic Gathering of 40 and 50 year SCI Survivors
On June 7, 2015, the spinal cord injury (SCI) research team from the Medical University of South Carolina, under the leadership of Dr. James Krause, held a historic celebration in Nicollet Island Pavilion in downtown Minneapolis. The event brought together study participants and guests, including 10 SCI survivors who are more than 50 years post-injury. The event commemorated 40 years of research, initiated by Dr. Nancy Crewe, at the University of Minnesota in 1973.
Former President of the National SCI Association, John Schatzlein, received the Career Contributions Award. Barbara Armour was presented with the Longevity after Injury Award, having reached 58 years since the onset of her SCI. The collective accomplishments of the participants are amazing. There have been 2200+ participants since the study’s inception in 1973 and they have collectively worked for over 12,500 years, logging more than 22,000,000 hours of gainful employment.
The event was a reminder of the magnitude of accomplishments by so many people with SCI. Larry Kegan was a boyhood friend of Bob Dylan and played on stage with him. Other individuals have written books, including Robert Peters (A Dive Too Deep), Dr. James Boen (The World’s Oldest Living Quadriplegic), and Mike Patrick (I Still Believe in Tomorrow). Darcy Pohland was a television reporter for a local news station.
When the study was initiated in 1973, living 40 years with SCI was viewed as unattainable, yet there were 26 people at the event to have lived more than 40 years with SCI. Those attending were proud of their involvement with research since knowledge gained from their participation has helped us to better understand SCI and the changes that occur as people age with SCI.
If someone wonders what they can do after SCI, they need only to look to what this group of people has done. They have lived and participated in their communities, been in long-term relationships, and worked to better their lives and the lives of others. All has been accomplished despite the harsh health consequences of SCI and aging, and the barriers to marriage and employment that often come with needing financial assistance for the high cost of SCI.
Together, we have worked to facilitate accessible environments, promote employment, and advocate for policies that create opportunities. We look forward to the next generation of people with SCI building upon these accomplishments and with hope for anyone with SCI that they have the opportunity to live long, healthy, and fulfilling lives.