Department of Family Medicine
RCMAR Measurement Tools
Diabetes-Related Assessment Tools
Please note that because many of these tools are copyrighted we cannot provide copies. Please contact the individual authors for permissions and copies of these tools. Contact information is available on the page describing each tool in detail.
Web Sites with Measurement Tools
The Medical Algorithms Page
A Medical Algorithm is any computation, formula, survey, or look-up table, useful in healthcare. More than 8000 algorithms, organized into 45 chapters, are available as spreadsheets which can be opened in your browser (IE4.1+, Netscape 7.1+ ). Developed by the Institute for Algorithmic Medicine, a non-profit Texas Corporation. This web site is currently designed for Internet Explorer and Netscape on computers running Windows98 and later versions.
The Brain Attack Coalition
The Brain Attack Coalition is a group of professional, volunteer, and governmental entities dedicated to reducing the occurrence, disability, and death associated with stroke. The goal of the Coalition is to strengthen and promote the relationships among its member organizations in order to help stroke patients or those who are at risk for a stroke. Five stroke scales are available for evaluating a stroke patient.
Center for Excellence in Surgical Outcomes
Sponsored by Duke University Medical Center, the Center for Excellence in Surgical Outcomes contains an Outcome Scales Repository with the respective references to the original questionnaires. Whenever available, a full-text reference to the original questionnaire and/or a review paper about the psychometric properties of the scale are also presented. Original questionnaires are either linked from another web site or posted after obtaining permission from the journal and author. This web site is currently under construction and may not be completed until early 2004. Ultimately, it will include scales to measure joint pain, neurological condition, physical disability, quality of life, and mental health, among many others.
Department of Veterans Affairs - METRIC
The Measurement Excellence and Training Resource Information Center (METRIC) is a Resource Center within the VA Health Services Research & Development Service. METRIC has been charged with improving the overall measurement quality in VA research. Improving measurement allows researchers to more accurately capture the health, social and economic condition of the veterans who use the services of the Veterans Health Administration. Sound and thorough measurement methods in VA research result in studies that produce reliable data. Sound data then enables VA organizations to improve the quality of care for veterans by making evidence-based decisions in the form of clinical, organizational or system-level modifications.
FACIT - Functional Assessment of Chronic Illness Therapy
FACIT.org manages the distribution and information regarding administration, scoring, and interpretation of a range of questionnaires that measure health-related quality of life for people with chronic illnesses. Their first questionnaire, The Functional Assessment of Cancer Therapy -General (FACT-G), was developed and validated over 10 years ago, and has been used in hundreds of studies worldwide. Since the publishing of the first FACT-G validation paper in 1993, they have developed more than 40 questionnaires and translated some of them into over 45 different languages. While cancer remains a major focus, they have also developed and translated instruments for fatigue, treatment satisfaction, spiritual well-being, HIV disease, multiple sclerosis, and other chronic conditions. The FACIT.org mission is to promote use and application of these measurements as a means of improving healthcare for chronic illness.
Harcourt Assessment, Inc.
Previously known as The Psychological Corporation. PsychCorp was the clinical division of Harcourt Assessment, which also had an education division called Harcourt Educational Measurement. In late 2003 the company unified the two divisions, retired their names, and officially changed the company name to Harcourt Assessment, Inc. They provide a large number of clinical assessment products for psychological evaluations.
Health and Psychosocial Instruments (HaPI)
The HaPI database provides easy access to information on over 120,000 instruments including questionnaires, interview schedules, checklists, index measures, coding schemes/manuals, rating scales, projective techniques, vignettes, scenarios, and tests. The instruments were culled from health fields, psychosocial sciences, organizational behavior, and library and information sciences. Dr. Evelyn Perloff at the University of Pittsburgh School of Nursing created HaPI.
International Society for Quality of Life Research
Click on ‘Resources’ from the selection list to view a page of links to sites and resources for quality of life research. An extended bibliography is also available.
Kidney Disease Quality of Life Working Group
The long form of the KDQOL™ (134 items) was developed in 1994 by the Kidney Disease Quality of Life Working Group with support from Amgen. After release of the KDQOL™ Long Form, the group began work on the KDQOL™ Short Form. The Short form was translated into French, Spanish, Italian, German, and Japanese for the Baxter Renal Outcomes Study. Since then, the group has been active in collecting longitudinal data, constructing scoring manuals, and developing software to make the administration and scoring of the KDQOL™ as easy as possible.
MAPI Research Institute
MAPI Research Institute is a non-profit international health outcomes organization established to support and promote research in the field of Health-Related Quality of Life (HRQoL). The Institute's team of experienced professionals offers a wide range of expertise and research services. Recognizing that the sharing of information is a crucial element in the development of any science, MAPI Research Institute freely provides information and counsel to academics, non-profit institutions, clinicians and hospitals. The institute works closely with academics, clinicians, pharmaceutical industry specialists, health authorities, government agencies, and other non-profit organizations to advance the science of quality of life assessment. Numerous questionnaires have been translated into many languages.
Measurement Excellence and Training Resource Information Center
The Measurement Excellence and Training Resource Information Center is the premier resource for improving measurement in the VA research and development community, dedicated to serving the measurement needs of VA researchers in every phase of research.
Medical Outcomes Trust
The Medical Outcomes Trust is a not for profit organization dedicated to improving health and health care by promoting the science of outcomes measurement, and the development, evaluation and distribution of standardized, high quality instruments that measure health and the outcomes of medical care. The Trust supports the use of these instruments with services and publications.
Michigan Diabetes Research and Training Center
The Michigan Diabetes Research and Training Center has developed several survey instruments for diabetes patients and health professionals which are available to download.
Quality Metric Inc.
QualityMetric Incorporated, an independent privately held corporation based in Lincoln, RI, was founded in 1997 by John E. Ware, Jr., PhD, principal developer of the SF-36®, SF-12®, and SF-8™ Health Surveys, the most widely used health assessment surveys in the world. In addition, QualityMetric offers short form surveys for many chronic disease states that can be used to predict risk, inform treatment decisions, and provide insight on the functioning and well-being of defined populations.
RAND Corporation Health Homepage
RAND Health's current research agenda is international in scope. It reflects the range of health care policy issues in the United States and abroad, analytic challenges posed by the needs of specific populations, and the demand for rigorous and innovative research methods to support empirical assessment. All of the surveys that appear on the RAND Health site are public documents, available without charge to all researchers.
Spanish Language Web Site of Geriatric/Gerontological Measurement Tools
Matia Fundazioa, San Sabastian, Spain
Social services for elder persons.
Stanford Patient Education Research Center
The Stanford Patient Education Research Center has about 20 years of experience developing, adapting, and testing self-administered scales in English and Spanish for research subjects with chronic diseases. These scales are here for you to use in your own research at no cost, thanks to funding from the National Institute of Nursing Research (NINR).
If you know of a web site that should be included in this list please contact the Measurement Tools Site administrator: Mark Geesey. This site was last updated November 2006.