SOUTH CAROLINA CLINICAL & TRANSLATIONAL RESEARCH INSTITUTE
Tools. Resources, and Glossary
Are We Ready? A Toolkit for Academic-Community Partnerships in Preparation for Community-Based Participatory Research
This free Toolkit was developed by MUSC academic and community co- investigators in response to the need for a guided method to strengthen academic- community partnerships and to implement successful community-based participatory research (CBPR) studies. Through individual assessments and guided team discussions, the Toolkit leads the partners to collaboratively identify current strengths and challenges, develop action plans to address any barriers, and create an equitable partnership that will create lasting relationships and impactful interventions.This Toolkit is available for download in English and Spanish. Click here to download.
Institutional Review Board and Study Development for Community Engaged Research
The involvement of individuals from non-MUSC community sites, as members of the research team, often necessitates consideration of additional federal human subjects protections regulations in order to gain MUSC IRB approval for the research. In addition to the resources below, SCTR offers free Regulatory consultations through the SUCCESS Center and through SPARC.
- The MUSC IRB Community-Engaged Research Approval Process Website provides the requirements, steps, and resources to guide investigators and program coordinators through the MUSC IRB process including flow chart, checklists, site guidance, approval process for non-MUSC research site guidance, documentation of CITI training for community partners and more. Get started here.
- MUSC Institutional Review Board Community-Based Participatory Research Protocol Addendum: Studies conducted in the community often have complex ethical considerations and additional administrative requirements such as obtaining the legal paperwork to conduct a focus group at the local library. To expedite the Institutional Review Board (IRB) approval process, studies should complete the Community-Engaged Research Protocol Addendum to address common IRB questions and concerns. The template is available for download on the MUSC IRB webpage.
- MUSC Approval Plan for Research Tool (MAP-R) helps you create a customized list of approvals necessary to inititate your study in a matter of minutes. Get started here.
- SCTR Research Toolkit is an online guide to assist MUSC research personnel in navigating the MUSC research process, which can be especially complicated for community engaged research. Get started here.
ResearchMatch is a recruitment tool connecting willing volunteers with researchers who are searching for study participants.
SCResearch.org is the South Carolina Research Studies Directory designed specifically to help people locate research studies in which to participate.
Palmetto Profiles is a networking system that allows users to discover research expertise within the HSSC consortium and at its member institutions, creating new opportunities for collaboration between researchers, between mentors and mentees, and between the research community and industry partners.
A Compendium of Publicly Available Datasets is available from the Office of Minority Health (OMH). The datasets are available to help researchers, public health practitioners and policymakers with data on health and health care disparities.
Community-based Participatory Research (CBPR) is a method of shared leadership between academic and community researchers and is defined as a collaborative process that acknowledges community members as experts and serves to empower communities, strengthen problem-solving capacity, and ensure cultural specificity. CBPR begins with a research topic of importance to the community and has the aim of combining knowledge with action and achieving social change to improve health outcomes and eliminate health disparities.
Community-engaged Research (CEnR) is a framework or approach for conducting research that equitably involves all partners, community and academic, in the research process and recognizes the unique strengths that each brings. CEnR requires partnership development, cooperation and negotiation, and commitment to addressing local health issues.
Community Engagement is the process of working collaboratively with and through groups of people affiliated by geographic proximity, special interest, or similar situations to address issues affecting the well-being of those people. It often involves partnerships and coalitions that help mobilize resources and influence systems, change the relationships among partners, and serve as catalysts for changing policies, programs, and practices.
Dissemination is mainly concerned with the communication of research results and findings to key stakeholders and audiences. The dissemination of research findings involves tailoring the message to various audiences, which may be community members, academic collaborators, and/or policy makers, while using the most appropriate communication medium or methods to share that particular information. Research findings can be disseminated and delivered in multiple ways to different groups.